The Federal Interagency Traumatic Brain Injury Research (FITBIR) Informatics System

The Federal Interagency Traumatic Brain Injury Research (FITBIR)
Informatics System

NOT-NS-12-016 &

Summary: NIH and the DoD are collaborating to develop the Federal
Interagency Traumatic Brain Injury Research (FITBIR) Informatics System.
The FITBIR Informatics System will provide the traumatic brain injury
(TBI) research community with a common platform for exchanging data,
protocols, and research-related information. Federally funded TBI
researchers who are collecting clinical phenotypic, genomic or imaging
data are expected to share their data via FITBIR, and to use this
national resource to advance their projects. TBI researchers supported
by non-federal sources are also encouraged to utilize the FITBIR
Informatics System.

For Notice NOT-NS-12-017 ,
NIH/DoD has posted a Request for Information from FITBIR users as well
as the broader biomedical research community and other interested
parties on the following and other matters relating to the FITBIR
Informatics System:

1. FITBIR Data Sharing Policies , including
timelines for uploading and sharing data, and requirements for
accessing data.
2. Strategies and incentives for promoting collaboration and use of the
FITBIR Informatics System.

3. Issues regarding informed consent and re-consent for data sharing.

4. Research priorities for the FITBIR Informatics System.

5. Strategies and tools for increasing the availability of aggregate
data and publications to the broad TBI community, e.g. patients and
families, healthcare providers, policy makers, and other stakeholders

Please note that responses to this RFI will only be accepted
electronically and that responses are due by June 30, 2012.

FITBIR will begin accepting clinical data on July 16, 2012 for a variety
of phenotypic assessments, including image and genomic data, in a
variety of formats (for details, see FITBIR, Contributing Data).

Department Administrators: Please redistribute this message to faculty
and researchers in your department.

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